- Joined
- Mar 16, 2005
- Location
- Archer Lodge
....in my neck, right side just above the clavical (collar bone) it was a "node" on my thyroid, thought to be a "goiterus cyst" .
Regular Dr sent me to an ENT ( Ear Nose Throat Dr. ) who in turn wanted to cut me open ASAP, ( 2 min into the exam and his statement was " This has got to come out! ") I being the rather argumentitive guy I am, said, " How 'bout we find out what "THIS" is before we start cutting holes in me ? "
THis wasn't exactly a favored response, but dude chilled out after a little discussion.
THere were :fine needle asperations" ( 6" needle with ahuge syringe) and "Strobe 'O Scopes", Ultra sounds and CAT scan. nothing diffinitive found, no big deal ( but "THIS" still needs to come out) so I waited 6 mos.
IT seems go grow a bit larger, to the point I could feel it when I nodded my head forward.
Ok, so let's see what " THIS" is, went back the the ENT, ( Who BTW is part of the Wake Med/UHC insurance thing) so now I get to go to a third Dr, whom I chose from a previous proceedure done 3 years ago. Now I'm dealling with REX.
Mar 26, I am in to have a "partial Thryroid lobectomy" which by and large, goes with out a hitch, BUT......
Once in, they find that the "Node" on the right side of the thyroid actually hides behind, and is actually massed over on the left side of my neck and attched to my trachia.
8 oz of "mass" and a thyroid laterand an over night stay in ICU at REX, I have a zipper neck ( 6 staples to close the incision) and a future date with an Endocrinologist AND an Onocologist.
Pappilary Carcinoma of the Thyroid is what it's called, in short Cancer.
OK, now the wife is in a tizzy, almost a full tilt wig fest ( not happy in the least). She lost her mother to cancer last spring, so she's really scared.
IF there is a cancer to have and recover from, it is this, so we are told. But it's gonna be a battle.
As of April 9th, I have been on a "Low Iodine" diet, no egg's bread, milk, seafood.any prepared foods with salt in them ( most all) as most salt is Iodized. Fresh water fish I can have, been eating a lot of trout and catfish. Can also drink all the beer and soda I can handle ( hmmm, Guiness, a meal in a glass....BRILLIANT ! )
This is in preperation for a Radioactive Iodine dose to kill what ever remaining thyroid cells there are left. Then I am on synthectic thyroid hormone for the rest of my life. ( Yippee !!)
The Radio Iodine treatment will leave me radioactive for about 4 days, to an unsafe level to anyone else, so I have to be away from my child (especially) and the wife for those days, and can't be with in 4ft of anyone else for a prolonged period (less than an hour) with out possible harm to them.
Hopefully this will take place next week. ( I SO want to get this over with) and I have a place set up to stay where I'll be away from direct contact with most folks. Thanks guys, you know who you are
And THEN, to get the cancer, oh yes, it's still there, 5 weeks of 5 days a week DIRECT radiation treatments ( my shit's gonna glow) [homer voice] DOH [/homer voice]
I figure by mid June early July, I'm gonna be one crabby SOB, and probably not much fun to be around. But, it'll get better.... right ?
SO why am I posting this?
Well, LISTEN to the DR's, but don't be afraid to Challenge them, I was given a 90% good-10% bad prognosis, which I gambled with and lost ( good thing I don't play the lottery) never really had any "good luck" anyway.
Be aware of your body, I knew the lump was there, been there for a long time, never thought anything about it. Turns out, it was causing all sorts of issues I wasn't associating it with. ( headaches, racing heart, and a host of other things)
Also, typing all this out, has helped me deal with it, I feel better.
I feel beeter physically after the thyriod removal, but the treatments are gonna knock me down, not looking forward to that. ( this low iodine diet is kickin my butt too, I'm feelin it at the end of the day)
thanks for listening, may the shwartz be with you !
BTW, REX Hospital ROCKS !! , they have been very cool, easy to work with and the ICU gals are top notch !! ( I was a rare case that could actually move and talk, so it was a treat for them)
Regular Dr sent me to an ENT ( Ear Nose Throat Dr. ) who in turn wanted to cut me open ASAP, ( 2 min into the exam and his statement was " This has got to come out! ") I being the rather argumentitive guy I am, said, " How 'bout we find out what "THIS" is before we start cutting holes in me ? "
THis wasn't exactly a favored response, but dude chilled out after a little discussion.
THere were :fine needle asperations" ( 6" needle with ahuge syringe) and "Strobe 'O Scopes", Ultra sounds and CAT scan. nothing diffinitive found, no big deal ( but "THIS" still needs to come out) so I waited 6 mos.
IT seems go grow a bit larger, to the point I could feel it when I nodded my head forward.
Ok, so let's see what " THIS" is, went back the the ENT, ( Who BTW is part of the Wake Med/UHC insurance thing) so now I get to go to a third Dr, whom I chose from a previous proceedure done 3 years ago. Now I'm dealling with REX.
Mar 26, I am in to have a "partial Thryroid lobectomy" which by and large, goes with out a hitch, BUT......
Once in, they find that the "Node" on the right side of the thyroid actually hides behind, and is actually massed over on the left side of my neck and attched to my trachia.
8 oz of "mass" and a thyroid laterand an over night stay in ICU at REX, I have a zipper neck ( 6 staples to close the incision) and a future date with an Endocrinologist AND an Onocologist.
Pappilary Carcinoma of the Thyroid is what it's called, in short Cancer.
OK, now the wife is in a tizzy, almost a full tilt wig fest ( not happy in the least). She lost her mother to cancer last spring, so she's really scared.
IF there is a cancer to have and recover from, it is this, so we are told. But it's gonna be a battle.
As of April 9th, I have been on a "Low Iodine" diet, no egg's bread, milk, seafood.any prepared foods with salt in them ( most all) as most salt is Iodized. Fresh water fish I can have, been eating a lot of trout and catfish. Can also drink all the beer and soda I can handle ( hmmm, Guiness, a meal in a glass....BRILLIANT ! )
This is in preperation for a Radioactive Iodine dose to kill what ever remaining thyroid cells there are left. Then I am on synthectic thyroid hormone for the rest of my life. ( Yippee !!)
The Radio Iodine treatment will leave me radioactive for about 4 days, to an unsafe level to anyone else, so I have to be away from my child (especially) and the wife for those days, and can't be with in 4ft of anyone else for a prolonged period (less than an hour) with out possible harm to them.
Hopefully this will take place next week. ( I SO want to get this over with) and I have a place set up to stay where I'll be away from direct contact with most folks. Thanks guys, you know who you are
And THEN, to get the cancer, oh yes, it's still there, 5 weeks of 5 days a week DIRECT radiation treatments ( my shit's gonna glow) [homer voice] DOH [/homer voice]
I figure by mid June early July, I'm gonna be one crabby SOB, and probably not much fun to be around. But, it'll get better.... right ?
SO why am I posting this?
Well, LISTEN to the DR's, but don't be afraid to Challenge them, I was given a 90% good-10% bad prognosis, which I gambled with and lost ( good thing I don't play the lottery) never really had any "good luck" anyway.
Be aware of your body, I knew the lump was there, been there for a long time, never thought anything about it. Turns out, it was causing all sorts of issues I wasn't associating it with. ( headaches, racing heart, and a host of other things)
Also, typing all this out, has helped me deal with it, I feel better.
I feel beeter physically after the thyriod removal, but the treatments are gonna knock me down, not looking forward to that. ( this low iodine diet is kickin my butt too, I'm feelin it at the end of the day)
thanks for listening, may the shwartz be with you !
BTW, REX Hospital ROCKS !! , they have been very cool, easy to work with and the ICU gals are top notch !! ( I was a rare case that could actually move and talk, so it was a treat for them)